A Survival Collective from a Chronically Ill Mummy

Blog

Must Have Blogging Apps (Apple Friendly)

Must Have Blogging Apps (Apple Friendly)

Whether you love writing on the go or you’re a busy mummy like myself, I LOVE being able to write and style my blog on the go with my iPad (most of these are android friendly too) and I feel it’s only right that I […]

My April Todo List – Blog Goals This Month

My April Todo List – Blog Goals This Month

Feeling totally inspired by a few bloggers I found recently, this post, in particular, being inspired by Too Cute For Life’s April Goals Post. I’ve decided to start sharing my goals and getting serious about tasks I really need/ want to get done. Judging by others […]

7 Ways to Keep Your Mind Active During a Flare

7 Ways to Keep Your Mind Active During a Flare

Living life with a chronic condition often means being forced to have rest days, even a pro’s at spoon management have random pain days that will only worsen if you push through. I’m the worst at pushing myself too far, trying to get as much done as I can and finding that I’ve ended up using spoons (energy) I didn’t have, from a day that hasn’t even started yet. This usually leads to being in agony the next day, starting the day with no energy. It’s times like this it’s good to know the best/ most relaxing ways of keeping your spoonie brain active.


 

1) Watch all the TV programmes

Watching TV is one of the easiest keeping your spoonie brain active, dragging your duvet to the sofa (or getting your partner to move your duvet while you ease slowly out of bed, or just watching TV from the cosy warmth or your best if you so lucky) is one of the easiest ways to relax. On really rubbish days, I repeat shows I’ve already watched and use them as background noise while drop back of to sleep. You’ll be surprised by just how much is out there and with services like Netflix, Amazon, BBC Iplayer and 4OD available you won’t be subjected to daytime TV that usually consists of Jeremy Kyle and Judge Judy.

 

2) Read/ Listen to audio books

Reading is a fantastic way to kill some time and immerse yourself into a different world. For those who aren’t big readers or struggle with poor eyesight like me, there is also a massive range of audio books available. Everyone will have their favourite genre to stick to but while you’re resting up why not take the chance to read/listen to some self-development books, sharpen your skills in your favourite area of knowledge and expand your mind while your body is resting.

 

3) Play Mobile/PC/Console games

I’ve always been a bit fo a gamer, since being the only girl at college I quickly got hooked on Call Of Duty and my gamer life exploded from there. On the better days when I’m able to get things done I do have to be aware get addicted to playing a game I’ve fallen in love with. Getting hooked can quickly take over life which isn’t so great if you have a lot to get done but amazing if you’re keeping your spoonie brain active. Otherwise, Sims on the PC has always been a go-to game when I need my body to rest, lord knows I could spend hours building THE perfect house. If neither are available to you, find out what mobile games you have available. There are massive libraries of games on to keep your mind entertained for a while.

  

4) Write a story/journal.

I find I need a clear head to be able to write, which is tough sometimes but it’s so soothing to write. Even if I’m unable to write a constructive blog post, writing about my thoughts and feels can help with anxiety. Sometimes just getting your thoughts out of your head and either on paper or onto the computer (personally I like the old-fashioned version) Finding the perfect notebook can be so inspiring sometimes. If you’re not keen on writing your feelings, then try just putting pen to paper and coming up with a story. You don’t have to be a top author, but getting your brain in the creative mood can just as good at keeping your spoonie brain active as watching TV.

 

5) Pick up a new hobby

Pick up a new hobby, the older we get the more we tend to lose touch with some the things we LOVED doing as kids or just don’t have time available to learn those things we’ve always wanted to. I always loved painting myself, I lost touch when I went to college and chose to do IT and haven’t picked it up since. (but I think I will now) I have also tried knitting and crochet in the past, although I don’t have the patients for them. If you’re stuck for ideas, it’s always worth browsing Pinterest for inspiration, this site couldn’t be any more filled with hobby/crafting idea’s to fill your time and you can choose depending on you’re energy levels and abilities.

 

6) Do some therapeutic colouring

I feel like colouring technically falls under having a hobby but since it became super popular this year with proof being super relaxing. It’s a great things to do if you’re feeling particularly pent-up and anxious and can be seen as a form of meditation. There a HUGE range of books out there to suit your preferences, most of which are at a reasonable price. I recently brought a fantastic nautical themed colouring book while I was in the hospital and have loved it since. Sometimes there is nothing better than sitting down and doing some colouring while the world whizzes around you. (Of course made a little more difficult if you own a cat since they are the pen stealing ninja’s)

 

7) Expand your musical tastes

On days when you absolutely 0 spoons, listening to music is one of easiest things you can do. I find myself just lying in bed some days and listening to music. If you’re getting bored with the music you have then take this time to expand your music library, open your world up to the massive library of music across the world. I recently connected my Spotify up to people on my Facebook friends list and have been pleasantly surprised with the new music I have found and It’s great being nosy at what every enjoys listening to. (And finding out that your ex-bf from high school now listens to the music he used to take the mick out of)

 

This post came about when I was forced to rest up for about 3 weeks straight and no longer had a way of keeping my mind active, being a spoonie means accepting when you need rest, even when accepting it is one of the hardest things for you to do. Every spoonie has wanted or felt the need to push through the pain days when you have way to much to get done but accepting and working with your body, you have a higher chance of living more peacefully with your condition. By listening to your body you’re decreasing the chances of doing yourself addition harm. I hope that you find these helpful, it was with the aid of the spoonie community I was able to put these together, so thank you to those who made suggestions on the days I was struggling.

 

A Day in Pictures: #TheBloggersMarket

A Day in Pictures: #TheBloggersMarket

A day spent amongst the incredibly eclectic #TheBloggersMarket, finding some super bargains and meeting some very talented people.

Getting Better is Scary To

Getting Better is Scary To

No one ever wants to be in pain, to get better and live a healthy life one day would be a dream come true but I’ve also found myself feeling anxious on days I’m doing ok. Here’s why. It took me the best part of […]

5 Ways Joining a Baby Group Stopped Me From Loosing My S**t

5 Ways Joining a Baby Group Stopped Me From Loosing My S**t

No one tells’s you how lonely becoming a parent is going to be, sure you have your new partner in crime by your side 24/7 but they spend the best part of a year doing not much but pooping, sleeping or eating. Friends you had drift because they don’t understand this new life you have and you find it difficult to help them understand. As a mummy, this new little blob has become the sole focus of your life and no one else really understand the affect that has on your life. Apart from other mummy’s. This is where baby and mummy groups can help, here are a few reason these groups are awesome.

 

1.Cure Loneliness/ Make New Friends

I was so thankful to have joined a mummy group while I was pregnant with Logan, it gave me a little step ahead in this area, I knew straight away If I didn’t get on and start getting out with Logan I’d probably lose my mind and become scarily anxious about the world around me. Getting out to a baby group/ stay and play asap really helped me feel like I wasn’t utterly alone. I can be pretty scary to walk into a group of mummy’s who all look like they have their shit together but honest spend a bit of time there and you’ll see that you’re all just doing your best. 

Some of the best advice I’ve received has come from just talking to other mummy’s who happened to try different things than me. It’s great sharing parenting tactic and honestly giving my little all the best bits of advice I learned. 

  

 

2. Let Your Littles One/s Open Up

Logan can be the LOUDEST child at home where he’s comfortable with his surroundings and the people around him but I noticed whenever we went out (even to the baby group) he went quiet. His voice disappeared and he began to just sit and observe. As uncomfortable as he felt we continued to go every week, and sure enough he found his voice again. Now he is the bubbly boy I’m used to at home and when we’re out and about. 

 

3. Increased Child Development

Logan has always been very forward, even without being surrounded by sibling he learned thing very quickly. He was doing things at a very young age before the average age suggests and going to baby group only excelled that. He loved being surrounded by children of all ages and playing with lots of new toys we don’t have at home. He’s slowly learning to share his toys and accept when some other don’t.

  

 

4. Open Doors For The Future

I’ve met so many awesome and inspiring people through various groups I’ve been to. Baby/ Mummy groups have a lot to offer and there is something out there for just about anyone. Hell if there isn’t why not try creating your group? It would benefit you and some many people around you and with social media, so easily accessible advertisement can be free. 

5. Maintain Your Identity

Becoming a parent changes you, it changes who you are as a person. I can be difficult to accept your new identity without loosing your old one. You may find your life goals shifting  which totally ok but if you scared of loosing sight of your old self a baby group can really bring you back. Being around other mummy’s going through the same struggles made me realise I’m still the same I was before, if not an even better version.

 

Weaning and Mom Guilt

Weaning and Mom Guilt

I felt mum guilt pretty much the minute I found out I was pregnant with Logan, we all wonder what kind of life we can provide our children but throwing my chronic condition into the mix made things ten times worse. After 2 and half […]

Pain is a Thief

Pain is a Thief

Chronic Pain won yet another battle. It’s stolen more from me than I care to think about. Backed me into another corner that I have too little energy to fight my way out of. Pain is a thief, it steals your life, your very being. […]

Why I Am Not My Sons Hero

Why I Am Not My Sons Hero

Remember being a kid and looking up to all adult as if they were these giants. You couldn’t believe you were ever going to be as big as them or smart as them. They have all this knowledge and you wonder how you might ever become as wise as they are.

Then you become a teenager and you think you know everything when realistically your terrified of the world around you and no matter how grown up you try to be you always fall back on your parents for help (some of us still do this!) For most, your parents are your heroes, they have it figured out, they’ve created homes, afforded cars, pay bills and make phone calls without looking terrified. (Still hate making phone calls!) they don’t show the struggles and hide pain with smiles.


Until you become a grown up, and you realise  that this adulting stuff is hard and it sucks and slowly you see through the cracks in your heroes, you eventually realise that they don’t have any more of a clue than you do. Eventually the pain and frustration they kept hidden from you before begins to seep through the cracks. For my family this meant actually sharing our feelings (something we were never good at) and learning not to be so stubborn in the face of pain. (I had both parent in hospital within the space of week) You soon realise that life is a bit of a dick to everyone and we’re all just surviving the best we can. No matter how old we get, how many lessons we learn, they’ll always be another lesson to learn. Maybe life has just been to tough on me, maybe I was forced to learn to many harsh lessons before I was meant to but I means I know that I don’t want to be the hero in my kids eyes.


I don’t want to be the hero to only let them down later. Of course I want my son to have a better life than I did, I want to share everything I know so that he doesn’t have to suffer as much as I did but I want my son to see my cracks, see the imperfections that have made me who I am because I wouldn’t be me without them.

5 Things I’ve learnt from having a chronic condition

5 Things I’ve learnt from having a chronic condition

Its pretty late for a 2015 review, truth is I’ve had this written for a while. Not can’t sure why I didn’t post it earlier. 2016 has already given so much that I’m just not ready to share yet, but they certainly make up for […]